Other resources

Cancer Australia

The Consumer Involvement Toolkit is based on the principles of the National Framework for Consumer Involvement in Cancer Control. The Framework is the foundation for the VCCC Model of Consumer Engagement.

ACTA CT:IQ

The Consumer Involvement and Engagement Toolkit provides practical advice for researchers and research organisations wishing to conduct patient-centred clinical trials.

NSQHS Standards

The Partnering with Consumers Standard recognises the importance of involving patients in their own care and providing clear communication to patients.

NHMRC

Statement on consumer and community involvement in health and medical research.

 

Safer Care Victoria

Partnering in healthcare framework supports health services with practical strategies to improve healthcare and outcomes for Victorians by better involving patients and their families.

Centre for Health Communication and Participation

The Centre for Health Communication and Participation mission is to improve health communication with and participation by consumers and carers through evidence-informed policy and decision making.

Telethon Kids Institute

The Telethon Kids Institute is committed to involving consumers and the community in all aspects of the research including workshops and resources for implementation.

Cancer Voices NSW

Cancer Voices has created guides to assist researchers and consumer representatives work together.

Health consumer organisations across Australia

Health Issues Centre 

Consumers Health Forum of Australia 

Cancer Voices Australia 

HealthCare Consumers (ACT) 

Health Consumer NSW 

Health Consumers Queensland 

Health Consumers Alliance of SA 

Health Consumers’ Council (WA)

Consumer and Community Health Research Network (WA)

International organisations

SPOR: Strategy for Patient-Oriented Research (Canada)

INVOLVE: National Institute for Health Research (UK)  

PCORI: Patient-Centered Outcomes Research Institute (US)