This special Monday Lunch live will run through the challenges of treating a rare disease in Australia and the strategies used to overcome these challenges including current sarcoma-related clinical trials and research projects.
You will also hear from a sarcoma survivor, Natalia Dewiyani founder of ‘Hugs For Change’. Natalie will share her cancer journey and her mission to embrace life.
In May 2015, Natalia Dewiyani was diagnosed with Ewing sarcoma. In 2016, she was diagnosed with melanoma. Refusing to be beaten, Nat made it her mission to embrace life – through physically embracing every person she met.
As a professional life coach, Nat believes there is immense power in laughter and the human touch. As founder of ‘Hugs For Change’, Nat created a spin of her misfortune ‘Laughter With Cancer’ as her legacy to spread happiness. She posts daily as her promise to smile every single day even (if it is just once) and inspires others to do the same. http://hugsforchange.com/charity/
Dr Susie Bae
Dr Susie Bae is a medical oncologist with subspecialty interests in sarcoma and breast cancer, working at the Peter MacCallum Cancer Centre and Eastern Health. She has also worked as a Clinical Research Fellow for the Australia and New Zealand Sarcoma Association (ANZSA) since 2012.
Dr Bae is the national lead in overseeing the Australian Sarcoma Database, which collects comprehensive sarcoma datasets from seven adult sarcoma services around Australia.
She has made major contribution within the ANZSA, serving on the Scientific Advisory Committee and facilitating communication with multiple stakeholders involved in sarcoma research including International Cooperative Groups, CROs, participating trial sites, and sarcoma consumers.
Dr Bae is the Australian-lead for the adult sites, participating in the rEECur study - International randomised controlled trial of chemotherapy for the treatment of recurrent and primary refractory Ewing sarcoma.
Dr Denise Caruso
Dr Denise Caruso is the CEO of ANZSA for the last seven years.
She holds a PhD in Immunology from the University of Texas/MD Anderson Cancer Centre, where she was a National Institutes of Health (USA) Fellow in Tumour Immunology and has been at the forefront of immunotherapy for solid tumours research.
Prior to commencing her graduate studies, Dr Denise held research roles at Harvard Medical School, Boston and at the Fred Hutchinson Cancer Research Centre in Seattle. Her previous role was as Senior Research Fellow at the Murdoch Children’s Research Institute at the Children’s Cancer Centre at the Royal Children’s Hospital Melbourne, where she conducted immunotherapy clinical trials and basic science research.