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22 Jul 2021
  • VCCC Alliance
5.30-6.30pm

VCCC Brain Cancer Supportive Care Forum

Assist in the co-production of a brain cancer survivorship platform

Consumers, carers, clinicians, and researchers are invited to join a meaningful discussion that will contribute to providing those affected by brain cancer a ‘toolkit’ for self-care, responsive to the challenges of living with a brain cancer diagnosis.

This consultative event aims to bring together consumers, clinicians, and researchers to contribute towards building a platform that will empower and increase survivorship and quality of life for those living with the brain cancer.

Professor Kate Drummond, Director of Neurosurgery at The Royal Melbourne Hospital, will be joined by a multidisciplinary panel of experts who will provide an overview of the proposed care platform which intends to improve geographic, physical, cognitive, and social care barriers for brain cancer survivors, whilst extending the in-hospital therapeutic relationship into patients’ and carers’ homes and communities.

Objectives:

  • Contextualise the key issues for brain cancer patients and their carers
  • Explain how digital resources can deliver supportive care solutions
  • Define the impact of co-design on patient outcomes and clinical utility
  • Establish a collaborative working group consisting of consumers, clinicians, and developers to create an Australian first technology-enhanced care platform for brain cancer patients and their carers

Program:

Introduction
Professor Kate Drummond

Survivorship post-treatment – a patient’s perspective
Lucas Adda,  Cooperative Trials Group for Neuro-Oncology (COGNO) consumer advisory panel member

Working together for a successful outcome - what needs to be done to support service implementation?
Professor Wendy Chapman, Director Centre for Digital Transformation of Health, University of Melbourne

The impact of a supportive care digital resource on the health care system
Professor Mei Krishnasamy, Director, Academic Nursing Unit Peter MacCallum Cancer Centre


Research-based digital innovation in healthcare can work effectively
Evan Davey, Partner, Two Bulls

Discussion:
All are invited to discuss the opportunities and challenges for a new platform.

What would you like to see in an online platform for brain cancer survivors that meets your needs?

Discussion questions will also be reflected in a pre-forum Delphi questionnaire. 

Thursday 22 July
5.30-6.30pm